today, I painted my nails

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Today, I painted my nails.  They aren’t perfect but I keep looking at them and feeling happy.  I feel happy because I took a few minutes today to do something for myself.

The past few months have been heavily consumed with many things beyond my control.  My daughter has done amazing with her FPIES.  She has passed every single food we have tried– which is a tremendous blessing.  She can eat squash, zucchini, carrots, blueberries, pears, apples, and bananas!  When I think back to the night she went to the hospital with violent vomiting after eating oatmeal, my heart aches.  I feel such fear.  When she got the FPIES diagnosis I felt defeated.  I felt like the next few months would just be one anxiety attack after another.  Thankfully, my mind has calmed down and so has her stomach! haha.  She has done so well with her foods and I am so thankful.  This week we go to the hospital to trial a trigger food.  Chicken.  I pray that she passes this as it will be a big step for her!  She also gets her allergy testing and I hope that she has no traditional food allergies.  She is a healthy, strong, beautiful princess and I am full of hope.

As for my son– we are still dealing with… “is it autism? is it not? is it ADHD? is it something that will get better with time?” etc.  He was supposed to meet with a school psychologist this week to evaluate him further… but I’m not ready.  I will push it off for a month.  Sometimes we have to make selfish decisions.  Today, I painted my nails while my husband cleaned the kitchen.  Today, I decided to postpone my son’s evaluation for myself and for him.  I would like for him to get more familiar with his new school and teachers.  I would like to give him a chance in another environment.  His new school is full of supportive, loving, caring, kind teachers.  I want him to experience that support before potentially labeling him with autism.  And for me, I won’t have to deal with the possibility of my baby going to the hospital with a food allergy and my son being labeled with a developmental condition in the same week.  My mental health is fragile and though I am much better, stressful times are very triggering.  I need to be the best mom for my babies.

This week I’ve spent many hours crying.  I see my son riding his bike with such joy.  He screams randomly, “mommy!! I love you!” …I melt into a puddle of tears.  I’ll never tire of hearing such precious words.  I cry because he’s so wonderful and perfect.  I don’t want anything to be hard for him.  I want life to be perfect.  I want him to be care free and happy.  I cry because things may be harder for him and there is nothing I can do to “Fix” it.

This post is getting lengthy, but I just needed to get a little bit off my chest.  I could write for hours about my thoughts and feelings about both of my children… specifically with their health issues.  I am personally struggling with the possibility of my son having an autism diagnosis.  I don’t know if that makes me a bad person or not.  I’ve had crazy thoughts…selfish thoughts. I’m just trying to work through it all in my head.  My husband has been working nonstop and I haven’t been able to get to therapy so I’ve been trying to work it all out on my own.  It is hard.  Anyone else struggle with the possibility of an autism diagnosis?  How did you cope?  How did you get to a good place?

-c

 

Thinking positive

I’ve been sitting here typing out several opening sentences to this blog… and just don’t feel it.  I think it is because the events of the past few months are just really hard to talk about.  Anything being “wrong” with my kid is extremely difficult to put into words.  Worries fill my head all day long and dread feels my heart.  I can feel the anxiety in my chest and in my stomach.  I just don’t feel like coming here and writing it all out.  Tonight, I feel like listing everything that I am thankful for.  I really need to focus on the positive right now.

My son is healthy.  My son is happy.  My son is starting to respond positively to discipline.  My son is hilarious.  My son asked me to hold him today.  My son said “I need mommy,” today.    He told me that I don’t kiss him too much.  My son loves the Beatles.  He loves music and singing.  He says hilarious things.  He makes me laugh.  He fills me with such joy.  He is tall and handsome and loving.  He has such a sweet heart and a sweet personality.  He loves meditating.  He loves learning.  My son is my perfect little man.

My daughter is healthy.  My daughter is happy.  She is learning to walk.  She babbles “mama,” “dada,” and I think she’s even babbling “Jack.”  She has daily talks with the Christmas tree and the ceiling fan.  She has learned to growl.  She officially has 4 safe foods– squash, bananas, apples and carrots.  She loves splashing in the bath.  She loves me and our bond has gotten stronger throughout the last 9 months.  She is wild and fearless.  She loves her brother.  She loves her daddy.  She is such a perfect blessing.

My husband is healthy, happy and smart.  He loves me with or without makeup.  He thinks I’m beautiful when I haven’t showered in 3 days.  He is encouraging and uplifting.  He deals with so much and handles it all so well.  He defends me when I need defending.  He loves our children so much.  He sees our marriage as a true 50/50 partnership.  He is supportive and wonderful.

I am healthy.  I am happy.  I am blessed with 2 beautiful children and a wonderful husband.  I am learning to love my naked face as I move away from makeup.  I am learning to appreciate my physical imperfections because they all tell a story.  I have rediscovered writing and it is a wonderful “me time” activity.  I will do anything for my children and they will always come first.  I have discovered over the past few months that I can handle much more than I ever thought and I can handle it amazingly well.  I am a good mom–even when dealing with my own issues.  I am learning to trust my gut.  I can recognize my blessings every single day.

I am thankful for the learning experiences that 2016 has brought.  I am thankful for the beautiful little girl I delivered this year!  It has been a long, trying year– but there is always something to be thankful for.