today, I painted my nails

nail-polish-with-flowers-1497592-639x852

Today, I painted my nails.  They aren’t perfect but I keep looking at them and feeling happy.  I feel happy because I took a few minutes today to do something for myself.

The past few months have been heavily consumed with many things beyond my control.  My daughter has done amazing with her FPIES.  She has passed every single food we have tried– which is a tremendous blessing.  She can eat squash, zucchini, carrots, blueberries, pears, apples, and bananas!  When I think back to the night she went to the hospital with violent vomiting after eating oatmeal, my heart aches.  I feel such fear.  When she got the FPIES diagnosis I felt defeated.  I felt like the next few months would just be one anxiety attack after another.  Thankfully, my mind has calmed down and so has her stomach! haha.  She has done so well with her foods and I am so thankful.  This week we go to the hospital to trial a trigger food.  Chicken.  I pray that she passes this as it will be a big step for her!  She also gets her allergy testing and I hope that she has no traditional food allergies.  She is a healthy, strong, beautiful princess and I am full of hope.

As for my son– we are still dealing with… “is it autism? is it not? is it ADHD? is it something that will get better with time?” etc.  He was supposed to meet with a school psychologist this week to evaluate him further… but I’m not ready.  I will push it off for a month.  Sometimes we have to make selfish decisions.  Today, I painted my nails while my husband cleaned the kitchen.  Today, I decided to postpone my son’s evaluation for myself and for him.  I would like for him to get more familiar with his new school and teachers.  I would like to give him a chance in another environment.  His new school is full of supportive, loving, caring, kind teachers.  I want him to experience that support before potentially labeling him with autism.  And for me, I won’t have to deal with the possibility of my baby going to the hospital with a food allergy and my son being labeled with a developmental condition in the same week.  My mental health is fragile and though I am much better, stressful times are very triggering.  I need to be the best mom for my babies.

This week I’ve spent many hours crying.  I see my son riding his bike with such joy.  He screams randomly, “mommy!! I love you!” …I melt into a puddle of tears.  I’ll never tire of hearing such precious words.  I cry because he’s so wonderful and perfect.  I don’t want anything to be hard for him.  I want life to be perfect.  I want him to be care free and happy.  I cry because things may be harder for him and there is nothing I can do to “Fix” it.

This post is getting lengthy, but I just needed to get a little bit off my chest.  I could write for hours about my thoughts and feelings about both of my children… specifically with their health issues.  I am personally struggling with the possibility of my son having an autism diagnosis.  I don’t know if that makes me a bad person or not.  I’ve had crazy thoughts…selfish thoughts. I’m just trying to work through it all in my head.  My husband has been working nonstop and I haven’t been able to get to therapy so I’ve been trying to work it all out on my own.  It is hard.  Anyone else struggle with the possibility of an autism diagnosis?  How did you cope?  How did you get to a good place?

-c

 

home from the holidays

I’ve been avoiding writing in this thing and the longer I avoid it the more I don’t want to do it.  Sometimes the words are scary.  Sometimes you have no idea where to begin.  I’ll try though.

Prozac is a wonderful drug.  Recently, I’ve been slack about my medication.  I keep forgetting to take it and when I remember I just think “oh it’s too late, i’ll do it tomorrow.”  Then, I don’t.  The level of Prozac in my body was not at a therapeutic level in the past few weeks and with my upcoming cycle… it was a recipe for disaster.

All I needed was one trigger.  That trigger was my son’s Christmas performance at school.  I was so excited to see him perform but also very nervous.  I saw him as he walked in the sanctuary.  He saw everyone and immediately turned to run away.  The teacher nudged him forward and he saw us and became more at ease.  He stood there with the other children and he performed like he was supposed to… however, anxiety set in.  He started to jump up and down, yell things randomly, sit down when he should have been standing, etc.  It wasn’t highly disruptive… but I was sensitive to it because of everything going on this year.  They had a teacher sitting beside him guarding him like a prisoner.  If he looked in the wrong direction she corrected him.  Side note: I haven’t decided if she just has a naturally mean resting face… or if she just really is mean and grumpy all the time.  I am not a fan of his teachers.  Anyway, with each criticism he seemed to act worse.  It was painful to watch.

Last year, his Christmas performance was a dream.  He did a perfect job.  He was so happy.  I cried… I couldn’t believe how grown up he was… how well he did.  It was magical.  This year, that joy was not there.  He was an anxious mess.  I knew in that moment that what my gut had been telling me all year was right.  He needed out of that school.  The teachers are not supportive.  They’re judgmental and critical.  They aren’t providing a nurturing environment for my baby… they’re stressing him out more.

It took some convincing but my husband is finally in agreement with me.  He saw the performance and knew that we should take my son out of preschool as well.  I am now talking with other preschools to find a place that is more understanding, compassionate and supportive.

In therapy one of the main things I talk about is trying to figure out where the line is… between the crazy stories my OCD and anxiety try to tell me… and what my gut is rationally telling me.  It is very hard to know which to listen to all the time.  When your gut is really telling you something… I think you know that feeling when you feel it.  Others can doubt you… disagree or tell you otherwise… but you know. I’ve known since September that this school was not the right fit.  I’ve known since September that is teacher was not the right teacher for him… (or maybe anyone?) and I’ve tried to talk myself out of this…but I haven’t been able to because it is what it is.  I know now that my gut is telling me to take him out of that school and I’m confident in the decision.

The holidays were especially hard for many reasons.  The performance was disappointing, the kids were sick, I was off my meds, we traveled and we’re exhausted.  We’re feeling better, I’m on my meds and I’m grateful for the newfound confidence in this specific situation.  I hope the New Year brings us some much needed rest, relaxation and clarity.